APFPR

AUSTRALASIAN PELVIC FLOOR PROCEDURE REGISTRY

Commonwealth Government health initiative established to record information about surgeries in Australia for stress urinary incontinence (SUI) and pelvic organ prolapse (POP) procedures. It is a clinician-led national clinical quality registry managed by Monash University.

OUR PURPOSE

The APFPR will collect information with the sole aim to improve quality of care and increase the safety and awareness of patients undergoing pelvic floor procedures. From the data collected we will track the long-term safety and performance of these procedures and establish the best surgical practice for the best patient health outcomes.

WHY PARTICIPATE

Your information will make an invaluable contribution to the future of Australia’s health system by helping to improve awareness of particular medical devices and facilitate patient-centred care and safety. This project is designed to safeguard the health of people undergoing procedures involving stress urinary incontinence (SUI) and pelvic organ prolapse (POP). Information is collected in a simple and secure way, and provides peace of mind for the patient that they have their procedure details recorded. As more patient information is collected, the data produced will be analysed and reported so every new patient considering these procedures can better understand the benefits and potential risks.

OUR PURPOSE

WHY PARTICIPATE

THE LIVED EXPERIENCE

The registry was established following a 2018 Senate Inquiry where many brave Australians who suffered deeply private and frequently traumatic experiences as a result of mesh-related procedures shared stories that prompted important changes to our nation’s health system. This registry is an outcome of their efforts, ensuring that complications associated with pelvic floor procedures involving mesh are monitored for future patients. The APFPR has consumer representation on the Steering Committee, and also has a Consumer Reference Group that provides feedback on registry developments, to ensure that the aims and activities of the registry is always informed by the experiences and advice of women who live with mesh complications.